Monday, July 27, 2009

Okay we are going to try this again. I updated the blog the other day and when I hit submit O lost Internet. Sorry about the long delay. Anyway we came home Wednesday after seeing Dr's all day Tuesday. first appt was with the Endocrinologist they are very well pleased on how much she has grown and they upped her growth hormones now on to the neurosurgeon he was very well pleased how well she was bouncing back and that it was an emergency to air lift her..He won't say why it was such an emergency but I am thankful that he takes Anna Marie illness so seriously. Last Dr was the nueroopthamaligist and her eyes looked good.

Saturday, July 18, 2009

Good Afternoon,
Anna was discharged this afternoon she has a ear infection not sure how we got this but she is doing good. Her spirits are getting better but she said yesterday that she was done being in hospitals and unfortanitly with psuedotumor cerebri there isn't a cure or a fix it solution. The shunt is only to help the csf drain however because it is csf it has protiens. Prayer Request: That Anna will hold up emotionally and physically and that this shunt will last a little longer.

Thursday, July 16, 2009

Anna's surgery went well the shunt was broken. Anna is right every time..She had a hard time coming out of surgery and had to have extra toredol to get stable. We are now just letting her rest. If you want to send anna a card go to nationwidechildrens.org Rm 3019 its still under Smith. We should have had her name change but I didn't bring her adoption papers sorry didn't know we were going to be flown from the hospital yesterday.
Dr Kosnik's sent in his Nurse Practioner to give us the update. Anna will be having surgery this afternoon to replace her shunt. Prayer request: Dr Kosnik and the medical team, Anna Marie to hold her chin up, mommy to be strong, and the medical bills that I am getting a little over whelmed with.

Thanks Again for all you all do for our family,

Joy, Anna and the rest of the Dingess Crew

Update

Last week Anna Marie had started complaining of headaches and stomache pain so we were just medicating her and seeing if it would pass. On Monday her attitude starting showing that her shunt was malfunctioning on Tuesday she said my shunt is broke on more that one ocassion. Wednesday morning @ 5am she woke me up saying mom I threw up and my headache is a 10/10 she continued to throw up until 745ish were she was able to finally keep Zofran down at 8 she passed out. 9 came and she came too and said mommy I wasn't sleeping but were was I so we were off to Scottish Rite after xray's they said her shunt had come apart in one and the other xray it wasn't so clear. We contacted her neurosurgeon in Ohio and gave him the report of what was going on after speaking to him it was decided that Anna Marie needed to be flown by a transport team to Ohio. So we waited for the medic plane to arrive in atlanta and were taken by ambulance to the airplane then another ambulance waited for us at the airport to take us to Nationwide Childrens. We are now waiting for the dr to come in and give us the plan. Anna isn't allowed to eat so I think they are going to do surgery today. Please continue to Pray for the following: Anna Marie's strength, the little people to be okay while Im away, and Mark while he is away at school.