This is Anna Marie Dingess's blog about her fight with Pseudotumor Cerebri. Pseudotumor is so rare in children that she is the 42nd child in the United States diagnosed with this disease.
Friday, November 28, 2008
The Infectious Disease Dr's came in and said that Anna's white blood cell count had dropped in her CSF. Which is a good thing and the cultures haven't grown anything yet. Praise the Lord. They are going to continue to let the cultures grow b/c it takes 5days to get a clear answer on what it is or isn't. So we are going to wait patiently until Monday to get all the answer however we are already claiming that God is clearing up this infection so we can put the shunt back in and come home! Thank you for your continued Prayers and support... I may not update the blog this weekend due to Anna's daddy,brother and sister will be here. We love you all..
Wednesday, November 26, 2008
Anna surgery was faster than expected. She has a infection in her stomach and in her CSF fluid. They externalized her shunt, to the outside of her stomach until we can get this infection all cleared up. Dr Kosnik asked Infectious Disease to get involved to find out what kind of infection this is. As it stands they are saying she has a form of meningitis's, we will know more on Friday what kind and what we have to do about them. They started her on 2 different antibiotics to start clearing up the meds. Once we have this infection cleared up we will then go back in and put her shunt back inside of her. Prayer concerns: Anna to stay strong & Care of Alexandria & Austin while Mark is working. And that the Dr's can figure out everything that's going on inside of Anna Marie. We love you all and are blessed for all of your Friendships. Have a Happy Thanksgiving :)
Tuesday, November 25, 2008
Monday, November 24, 2008
Well, its with sad news to tell you that we are back in the hospital. Anna Marie left the hospital yesterday morning to get to the hotel and eat and her head started hurting really bad we gave her a dose a lortab she then went to sleep slept all afternoon woke up and took another dose of med's. We went to get some dinner and she slept thru it we went back to the hotel and she took another dose of meds went back to sleep. Anna woke up around 10 and laid in the bed with my mom and talked for a little while then cuddled up to her and went back to sleep. Then Monday we woke up and I had to completely dress her to go to Dr Katz office Anna was very lethargic and just wanted me to hold her. Then she started throwing up and became very week we called Dr Kosnik and they told us to come in thru the ER. So we left Dr Katz office and came straight to the ER at that time Anna passed out and didn't respond to anything finally they awoke her we sent down for an CT and xray to find a kink in her shunt which means its not working we are giving her around of meds to see if we can get the kink out. If the round of med's don't work then we are going to do surgery again and replace the shunt. That's all for now I will write more as soon as I know the next plan
Saturday, November 22, 2008
Well, they have no idea why Anna Marie's stomach swelled. They are going to discharge us to a hotel for us to continue to watch her and see how she does. However we can't go far in case she worsens, so we are going to be at the hotel till Dec 4. We will continue to update as soon as we know anything. Thank you for your continued prayers and support.
Friday, November 21, 2008
Thursday, November 20, 2008
Well, the long awaited news.. Anna Marie went into surgery at 8:05pm and was in till 10. The surgery went well and Anna did very well. They took out the old tubing and replaced it with new they also worked on her shunt, then they installed a valve that releases her pressure when she is laying down therefore it should help her headaches. Anna is up and has been walking. She is doing well and is gratefully not to have a headache. We will update later. Thank you the Dingess Clan
Wednesday, November 19, 2008
Tuesday, November 18, 2008
Well the news everyone has been waiting for. First of its been a really long day we started seeing Dr's at 9am and finished at 7pm. Anna is having surgery tomorrow however instead of the VP shunt in her brain they are going to put a new one in her back because her ventricles aren't opened enough in her brain to put in the VP shunt. And if we did do the VP shunt there are several risks because of the ventricles not being opened. Her surgery is at 2pm. We don't know how long we will be in the hospital it will all depend on how she takes to this new shunt. Nor do we know when we will be coming home due to follow up visits with all the Dr's post op. Thank you for all your continued Prayers and support as we take this journey with Anna Marie. We will update post surgery tomorrow.
Monday, November 17, 2008
Saturday, November 15, 2008
Well we are leaving for Ohio tomorrow. We are driving straight through so we should arrive around 9pm. We have doctors appt. on Tuesday. Anna has had a really tough week and has had some pretty bad behavior because of it. As of right now they are doing surgery on wed. med's aren't helping so we are going to put a shunt in her head. Thanks for all your prayers and I will update Tuesday night.
Tuesday, November 11, 2008
Well, we are preparing to go back to Ohio on Sunday. We spoke with Dr Kosnik assistant this evening and they are going to put Anna Marie on the schedule for a VP shunt surgery on Wed. the 19th. We follow up with all the dr's on tuesday the 18th. We were suppose to start Anna on growth hormones this last week but due to her shunt not working the encrinologist has decided to hold off until Anna recieves the new shunt. Please continue to Pray for Anna Marie as I think the pain has started to wear on her more and more. I will update more later. Joy
Thursday, November 6, 2008
Good Evening, I just want to update everyone. It was Anna Marie's 7th birthday today..And Praise God we went all day headache free (as far we know she didn't tell us she did if she had one). So we are Praising God for that. As for the other days it hasn't been so good on Monday, Anna said it was a 30 it hurt so bad. We have a number system 0 no pain 10 worst pain. And she said no mom you don't understand its a 30. Tuesday she made it till 12 at school then we had to go get her b/c of her HA. Wednesday she hung in there till we went to Church and Mark had to come and get her. We are going back to Ohio on November 17th, to follow up with all of Anna's specialist and hoping for a VP shunt to be put in.
Sunday, November 2, 2008
Good Evening Everyone, We came home today, Yesterday after we were released from the hospital we went over to OSU and meet with Dr. Katz our quarterback as you will. The plan of action is for him to talk to Dr.Kosnik on Monday and find out what his reasoning was for not doing surgery this week. We are right now going back on the 17th and meeting will all of Anna's doctors. And more than likely doing surgery then so we will probably miss Thanksgiving here in GA. Thank you for your continued prayers for Anna Marie. 2 major prayer request, that Anna eats and her headaches are bearable until we return to Ohio.
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