This is Anna Marie Dingess's blog about her fight with Pseudotumor Cerebri. Pseudotumor is so rare in children that she is the 42nd child in the United States diagnosed with this disease.
Thursday, July 16, 2009
Anna's surgery went well the shunt was broken. Anna is right every time..She had a hard time coming out of surgery and had to have extra toredol to get stable. We are now just letting her rest. If you want to send anna a card go to nationwidechildrens.org Rm 3019 its still under Smith. We should have had her name change but I didn't bring her adoption papers sorry didn't know we were going to be flown from the hospital yesterday.
Dr Kosnik's sent in his Nurse Practioner to give us the update. Anna will be having surgery this afternoon to replace her shunt. Prayer request: Dr Kosnik and the medical team, Anna Marie to hold her chin up, mommy to be strong, and the medical bills that I am getting a little over whelmed with.
Thanks Again for all you all do for our family,
Joy, Anna and the rest of the Dingess Crew
Thanks Again for all you all do for our family,
Joy, Anna and the rest of the Dingess Crew
Update
Last week Anna Marie had started complaining of headaches and stomache pain so we were just medicating her and seeing if it would pass. On Monday her attitude starting showing that her shunt was malfunctioning on Tuesday she said my shunt is broke on more that one ocassion. Wednesday morning @ 5am she woke me up saying mom I threw up and my headache is a 10/10 she continued to throw up until 745ish were she was able to finally keep Zofran down at 8 she passed out. 9 came and she came too and said mommy I wasn't sleeping but were was I so we were off to Scottish Rite after xray's they said her shunt had come apart in one and the other xray it wasn't so clear. We contacted her neurosurgeon in Ohio and gave him the report of what was going on after speaking to him it was decided that Anna Marie needed to be flown by a transport team to Ohio. So we waited for the medic plane to arrive in atlanta and were taken by ambulance to the airplane then another ambulance waited for us at the airport to take us to Nationwide Childrens. We are now waiting for the dr to come in and give us the plan. Anna isn't allowed to eat so I think they are going to do surgery today. Please continue to Pray for the following: Anna Marie's strength, the little people to be okay while Im away, and Mark while he is away at school.
Sunday, June 21, 2009
Update..Anna Marie is doing great!! Praise the Lord!! She had a check up last week and went very well.. We are doing a two different fundraiser..Next Sunday June 28, 09 Wow Cafe & Wingery is donating 20% of all sales to Anna Marie. To help cover more of her rising medical bills. The other fundraiser is We are asking that everyone donate just a $1.00 and then ask 10 of your friends to donate a $1.00. If this is something that you would be willing to help out with, you can go to www.teamannamarie.org or www.annamariesfight.blogspot.com and donate via Paypal. $1.00 is a can of Coke but if you donate and ask 10 people to donate and they ask 10 to donate etc. it can really help out with the all her medical costs and related travel and accomodation expenses. Its just a dollar, thats just 4 quarters and we all know that we use that much for just a candy bar. Go without a candy bar for a day and know your helping a girls rising medical costs.
Thank you,
Team Anna Marie
www.teamannamarie.org
Thank you,
Team Anna Marie
www.teamannamarie.org
Thursday, April 30, 2009
Wednesday, April 29, 2009
Tuesday, April 28, 2009
Update
Just an update on Anna Marie. Last tuesday she woke up with a headache and said my shunt is broken, we went to the pediatrician and they gave her decadron to drain her fluids off of her head. On monday we drove up here and this morning went to see the neurosurgeon. At that time he decide to admit Anna Marie and we will have surgery around 2pm tomorrow. If you would like to make anna a card go to www.nationwidechildrens.org her room # A5614. Thank you for your conitinue support and prayers. Joy
Monday, April 27, 2009
Anna has been having headaches since last week. Dr Kosnik put her on decadron thru her pediatrician to lower the fluid in her head. However that didn't work and now we are going to see Dr Kosnik in the morning to schedule surgery for Wed. to replace her shunt. Anna keeps saying my shunt is broke so please PRay for guidance tomorrow and Wed. WE love you all. The Dingess clan
Tuesday, April 7, 2009
We are here in Ohio for check ups. Dr Kosnik (neurosurgeon) gave us great news, Anna's shunt is still working properly and the headaches she had last week where from the barometric pressure changes which then affects her. Then went to see
Dr Hardin (endocrinologist) and Anna grew I have to get the measurement in inches but in cm she is 117.2cm. So we up her growth hormone intake and go back in 3mths for another check up. Then last we went to Dr Katz (neuropthamology) Our quarterback!! and Anna has 20/25 vision and her optic nerves aren't swollen. This has been the best visit ever. After that we came back to the hotel then went and ate dinner then off to shopping where we were able to get size 7 clothes. We had so much fun shopping this was a great day..God is so good!!! Never forget to Praise him in the Storm and in the GOOD TIMES!!!!!!!!!!!!!!!!!!!!!!!!!!!
Dr Hardin (endocrinologist) and Anna grew I have to get the measurement in inches but in cm she is 117.2cm. So we up her growth hormone intake and go back in 3mths for another check up. Then last we went to Dr Katz (neuropthamology) Our quarterback!! and Anna has 20/25 vision and her optic nerves aren't swollen. This has been the best visit ever. After that we came back to the hotel then went and ate dinner then off to shopping where we were able to get size 7 clothes. We had so much fun shopping this was a great day..God is so good!!! Never forget to Praise him in the Storm and in the GOOD TIMES!!!!!!!!!!!!!!!!!!!!!!!!!!!
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