Saturday, May 3, 2008

Anna Marie's Fight with Pseudotumor Cerebri

Anna Marie Smith-Dingess was diagnosed with Psuedo Tumor Cerebri on September 15, 2006. She is 1 of 29 children in the World that have been diagnosed with this disorder. It is generally found in middle aged, overweight black women but Doctors do not know why it is showing up in children. This is a fluid tumor around spinal cord and brain. Since her diagnosis she has two LP shunts put in. The LP shunt relieves the fluid into her stomach. Pseudotumor side effects include headaches, nausea and vomiting and permanent blindness. Anna has been seen by the outstanding doctors at Emory and at this point, they have finally said that their may not be much that they can do. The Pseudotumor may have also damaged her Pituitary Gland thus meaning she may not grow anymore. In order to help Anna fight this disorder, Anna and her mom Joy Dingess, will be attending Puesdo Tumor Cerebri Conference in Houston, Texas in June. Also, they will start meeting with a team of researchers in Ohio, in July. They will be making multiple trips this year to Ohio. They may also have to go to Houston for brain surgery to help her grow.3 Ways to get involved:

Pump it Up (A kids playhouse with many inflatable toys)
McDonough, GA
Monday, May 5, 6-8 p.m.
Tickets $10 per child

Silent Auction
Saturday, June 7, 7-9 p.m.
Heron Bay Country Club (subject to change)McDonough, GA
Advance Tickets $12 $15 at the door
(Art show and sale, entertainment, desserts, hor d'oeuvrs, drinks)


Donations:
Food
Gift Cards
Gas Cards
Money for Hotel

Plus, there are future events in the works like a Murder Mystery Theatrical Performance. If anyone has an idea on a fundraiser, please contact us.


Dingess Address:80 Bryans Dr McDonough, GA 30253