This is Anna Marie Dingess's blog about her fight with Pseudotumor Cerebri. Pseudotumor is so rare in children that she is the 42nd child in the United States diagnosed with this disease.
Thursday, April 30, 2009
Wednesday, April 29, 2009
Tuesday, April 28, 2009
Update
Just an update on Anna Marie. Last tuesday she woke up with a headache and said my shunt is broken, we went to the pediatrician and they gave her decadron to drain her fluids off of her head. On monday we drove up here and this morning went to see the neurosurgeon. At that time he decide to admit Anna Marie and we will have surgery around 2pm tomorrow. If you would like to make anna a card go to www.nationwidechildrens.org her room # A5614. Thank you for your conitinue support and prayers. Joy
Monday, April 27, 2009
Anna has been having headaches since last week. Dr Kosnik put her on decadron thru her pediatrician to lower the fluid in her head. However that didn't work and now we are going to see Dr Kosnik in the morning to schedule surgery for Wed. to replace her shunt. Anna keeps saying my shunt is broke so please PRay for guidance tomorrow and Wed. WE love you all. The Dingess clan
Tuesday, April 7, 2009
We are here in Ohio for check ups. Dr Kosnik (neurosurgeon) gave us great news, Anna's shunt is still working properly and the headaches she had last week where from the barometric pressure changes which then affects her. Then went to see
Dr Hardin (endocrinologist) and Anna grew I have to get the measurement in inches but in cm she is 117.2cm. So we up her growth hormone intake and go back in 3mths for another check up. Then last we went to Dr Katz (neuropthamology) Our quarterback!! and Anna has 20/25 vision and her optic nerves aren't swollen. This has been the best visit ever. After that we came back to the hotel then went and ate dinner then off to shopping where we were able to get size 7 clothes. We had so much fun shopping this was a great day..God is so good!!! Never forget to Praise him in the Storm and in the GOOD TIMES!!!!!!!!!!!!!!!!!!!!!!!!!!!
Dr Hardin (endocrinologist) and Anna grew I have to get the measurement in inches but in cm she is 117.2cm. So we up her growth hormone intake and go back in 3mths for another check up. Then last we went to Dr Katz (neuropthamology) Our quarterback!! and Anna has 20/25 vision and her optic nerves aren't swollen. This has been the best visit ever. After that we came back to the hotel then went and ate dinner then off to shopping where we were able to get size 7 clothes. We had so much fun shopping this was a great day..God is so good!!! Never forget to Praise him in the Storm and in the GOOD TIMES!!!!!!!!!!!!!!!!!!!!!!!!!!!
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