This is Anna Marie Dingess's blog about her fight with Pseudotumor Cerebri. Pseudotumor is so rare in children that she is the 42nd child in the United States diagnosed with this disease.
Thursday, October 21, 2010
For anyone who is reading Anna Marie's blog for the first time. Psuedo tumor cerebri and Intercrainal Hypertension it the same thing. Just with several different names. Normally in children they call it psuedo tumor and adults intercrainal hyptersion. You can also donate here by clicking on the donate button and following the steps. Also a big huge thank you to Colorado leads group for doing a fundraiser that is going on right now..
Again
Well after surgery in Sept. in my opinion Anna never got back to her full self. About 2ish weeks ago her valve in her stomach popped out. Well we went to her ped's and she didnt really like and we had an appt with the surgeon who did her surgery in september he had no clue. But decided to push on it pretty hard well that was last wednesday. After that day she progressivly got worse by monday her face was swollen and she wasnt able to go to school. Tuesday she went to school for 2hrs and came home b/c she couldn't handle the pain. So off to Ashley's office we went we both agreed it was broken but was trying to avoid the er like the plague but Wednesday we got up and Anna was worse, so off to the er we went. Xrays, ct scan later it was very clear her shunt is broken and the valve is not connected. They admitted Anna into Egleston for surgery today. Please pray specifically for anna she is really not sure about Dr "big guy" Kosnik isn't doing her surgery so she's extremmely scared. Love you all joy
Yuck :(
I just realized in my head I updated the blog but not in reality. So in Septemeber Anna had severe abdominal pain went to the er they sent us home 2 days later we were back ended up in emergency surgery they found psuedo cyst and a fluid pocket and her shunt twisted. Fixed the problem and she was back to Anna almost.
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