This is Anna Marie Dingess's blog about her fight with Pseudotumor Cerebri. Pseudotumor is so rare in children that she is the 42nd child in the United States diagnosed with this disease.
Saturday, December 18, 2010
Please keep Praying as we are seeking a neurosurgeon. The Dr in Atlanta said he wouldn't take her because Anna Marie was to high risk but did her surgery so we are praying that maybe he would have a change of heart and that Anna and I would be okay with him... Anna isn't really sure about him because he told her she was to high risk and in her world that doesn't give her very much confidence.
THANK YOU
WE HAVE 2 HUGE THANK YOU'S... 1ST ONE IS TO DENVER LEADS GROUP FOR THERE FUNDRAISER AND SUPPORT, YOU HAVE NO IDEA HOW MUCH THAT MEANT TO US. THANKS AGAIN
2ND ONE IS TOO KIDS WISH NETWORK -- ANNA MARIE WAS GRANTED A WISH TO GO TO FLORIDA FOR A 5 DAYS. WE WENT TO SEA WORLD, UNIVERSAL, DISNEY FOR 3 DAYS.. AND THE LAST WAS DADDY CAME HOME FOR IT
THANK YOU ALL EVERYONE FOR YOU CONTINUED SUPPORT FOR ANNA MARIE AND THIS HORRIBLE CHRONIC ILLNESS IH/PTC. WE LOVE YOU ALL THE DINGESS'S
2ND ONE IS TOO KIDS WISH NETWORK -- ANNA MARIE WAS GRANTED A WISH TO GO TO FLORIDA FOR A 5 DAYS. WE WENT TO SEA WORLD, UNIVERSAL, DISNEY FOR 3 DAYS.. AND THE LAST WAS DADDY CAME HOME FOR IT
THANK YOU ALL EVERYONE FOR YOU CONTINUED SUPPORT FOR ANNA MARIE AND THIS HORRIBLE CHRONIC ILLNESS IH/PTC. WE LOVE YOU ALL THE DINGESS'S
Update!!
Anna Marie's had another surgery Dec 2, because she had fluid coming out of her scar and had made a bubble. So they went in and cut out the pseudo cyst that was in between her H2 valve and the skin. Then they opened her shunt up and let it flow put it back together replaced a connector that had broken cleaned out her belly and back to recovery she went. Anna Marie had a great surprise her grandpe from CO flew in to be with her and stayed at the hospital with her.. So we are on the way to recovery and Praying she can go a little further in between surgery's.
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