Good Evening,
Today was very interesting. We saw the Chief of Staff at Nationwide Childrens, a neurosurgeon. He gave us some food for thought, YEAH. Today they did a CT and xray and found out that her shunt is clogged. Anna's ventricles have little to no space for the CSF to flow or drain properly (we knew that but not the why), so...He is recommending a subdural decompression, which means in "mommy speak" that he will cut part of Anna's skull out to give her brain more room to expand and function the way it is ment to. There is also a concern that Anna has Chiari Malformation which means that her cortext is falling out of her skull (the back of her head, neck area). This surgery scares the bleep out of me but I still believe that we are being lead here to these doctors that have worked with other children with this disease, The Chief called a patient who had this surgery two weeks ago and we are meeting tomorrow. I am looking forward to get the pro-cons from her mom. Tomorrow Anna is having an MRI and the first surgery will be Wednesday the 10th and the second the 17 or 22. We will be here for a while. Please if you have anymore points/miles please let me know. Also, we have bank account for donations. I thank you all. Many Blessing to you and your families...Also please pray for Austin,Alexandria & Mark as they are so far away. You can also email us at annadingess@yahoo.com
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