This is Anna Marie Dingess's blog about her fight with Pseudotumor Cerebri. Pseudotumor is so rare in children that she is the 42nd child in the United States diagnosed with this disease.
Tuesday, December 29, 2009
Well its now Christmas eve I had ran out to do a few erans and Mark (the best dad in the world) had given all the kiddos bath and they were waiting on me to get home to get dressed. Anna had put on her sweats and said Im staying here Im not feeling well. I talked her into going to Christmas Eve service with some pain med's. Then we returned home she yet once again had a fever of a 101' we gave her tylenol and a bath and broke it for a little bit. WE made it thru Christmas with lots of Prayer and tylenol. Then saturday night she went to bed again not feeling great and woke up @ 430 and said mom I have a h/a im nasueated and my eyes are burning. Well thats all I needed to hear and off to CHOA again. Except this time I was leaving till we got answers. And after several test and scans they diagnosed her with Mastoiditis. And attmitted into Scottish Rite, now the fun begins they inform me we will be here 14-21 days. Wow I thought thats a long time so I started talking to all the doctors on anna's team and told them she would do better at home so they are looking into the possibilities of letting us come home and me take care of her 24/7 the next 3 wks. Sorry back to monday I had asked for them to do a LP - Lumbar Puncture - under floroscopy to make sure the infection had not gotten into her CSF and caused menigitis. PRaise the Lord it hadn't. So the rest of the day anna just hung out on her back b/c after an LP you have to lay flat. Mrs Ann Sims from church came and sat with Anna so I could run home and deal with a house issue, love on my babies, take a shower and get a kiss from the hubby. Then back up here I came. WE meet with most of the dr's on Anna's team they have put together up here. Most of her culturals are back and are negative YEA!! They have diagnosed her with Chronis Sinutis (sp) and mastoiditis. Its wednesday now and annas had a couple of headaches that are pretty bad but with the help of tylenol 3 w/codine and Toredol coctailed together we having a smiling girl now.
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