This is Anna Marie Dingess's blog about her fight with Pseudotumor Cerebri. Pseudotumor is so rare in children that she is the 42nd child in the United States diagnosed with this disease.
Friday, January 22, 2010
Sorry I didn't do this earlier. Anna's surgery went well, when she came out of surgery her hear rate was being funny and would go down then up then down and up. But she is doing GREAT were up walking around doing makeover on our friend avalon. Bugging the nurses which bye the way she does best! The best news yet we get to come home tomorrow!! YEA PRAISE THE LORD!! I am goping to be wore out next week but that will be okay. Thank you for all the PRayers... Anna said to tell yall to please PRay for her friend Avalon b/c she has to have surgery on monday. Please go and read her story. www.caringbridge.org/visit/avalonhavan Love you all Anna and Joy
Thursday, January 21, 2010
Wednesday, January 20, 2010
Well today we went to see the ENT to see if Anna's headaches were from the mastoiditis she had a few weeks back. Well her mastoids look great and the pain isn't coming from there. So we called Dr Big Guy back and told him our good but crappy news and he said come in first thing to see me. While we were at the ENT I asked him to look in Austin's ear b/c it had been bleeding and we find out he has a ear infection and needs new tubes so I guess when we get home I will be going to take little man to get new tubes. I will post tomorrow and let you know what the Big Guy says. Anna Marie doesn't feel good at all and needs your prayers we have almost ended up in the er twice since being here b/c her pain is out of this world.
Love to all the Dingess Crew
PS THE GREATEST NEWS OF ALL WE FINALY RECIEVED HER NEW BIRTH CERTIFICATE
ANNA MARIE DINGESS :)
Love to all the Dingess Crew
PS THE GREATEST NEWS OF ALL WE FINALY RECIEVED HER NEW BIRTH CERTIFICATE
ANNA MARIE DINGESS :)
Tuesday, January 19, 2010
update
Well we 3 dr appts today and only saw 2. The first one was Dr Hardin (endocrinologist) anna is doing great with her growth. She grew 13 cm over the last year. They are sending her to a rhumatologist (sp) and are going to keep her on the growth hormone and have a check up in 6mths. Now on to Dr Kosnik (neurosurgeon) said that he wants Anna to go see a ENT in the morning and if her headaches are not fronm the mostoiditis then we will go back on thursday morning and repunt. Then we are waiting to see when we will go see the rhumatologist and should find out tomorrow. Please Pray that we other get a paycheck very soon. We have $400. to last us the week and to get us home. God has always provided and thats why we our asking for PRAYERS. Love you all Dingess Crew
Thursday, January 7, 2010
As of today the Jan. 7 Anna is doing better we had a dr's visit on Monday and they want us to go see a ENT so as soon as our insurance gets fixed we will be going to see the ENT. We are going to homeschool Anna for the month of January to see if we can get her immune system better she can go back in Febuary. We go to Ohio on January 18-21st for check ups but so far Anna's shunt is doing great PRAISE THE LORD! in a couple of day's this shunt will be 3mths old Praying it will work for along time..Thanks again for all the Prayers we sure appreciate them and can feel them.
On wednesday the 30th they checked her CBC and it had dropped back down to normal so they released us to come home. This meant for the next 14days Anna couldn't leave the house unless she has to go tthe dr. The med's have made her not feel to great but were home! I was giving her med's every 8hrs which meant I had to get up in the night to give med's check her temp and so on but thats okay b/c she is doing better and were not at the hospital.
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