This is Anna Marie Dingess's blog about her fight with Pseudotumor Cerebri. Pseudotumor is so rare in children that she is the 42nd child in the United States diagnosed with this disease.
Friday, September 3, 2010
Sorry its taken so long to update they blocked us out of the blog for a while
Good afternoon, I will take you on our journey since January. We went thru the spring with some nasty migranes and mommy was trying to finish the house since daddy was deployed. Anna started having memory loss as the headaches got worse. We went to Ohio in May and had another surgery while they were in her they found a cyst that had 200cc of fluid. We went home with orders we had to come back in 3 wks. So the first of June we headed back up to Ohio. We started seeing dr's early tuesday morning at the time did an xray and found another cyst in her belly. They referred us to a GI dr on wednesday morning and he said she was fine from his point of view to go back to Dr Kosnik on thursday we went back to see the dr to find out he wanted a ct so downstairs we went to get this down 2 hrs later we completed the ct and went back upstairs. Once we arrived back into his office he sent us straight to the General surgeons. We waited for another 2hrs to see this dr as they worked us in and we got to the back and saw Dr Smith Im not sure why your here. I told him it was becuase she had a cyst in her belly he was confused and said I don't see anything go back to Kosnik's office. Well this was after 5pm and he was waiting for us. He said Joy you have to see this so on one screen was the xray with the cyst and the next one the ct without it. Praise Jesus it was gone in 2 days... Well then we came home and had a pretty good summer with just a few headaches. Then on tuesday August 31,10 anna started throwing up with a nasty headache so on wednesday we went to see Dr Ashley (the best ped's dr ever) and she said I know its bad when shes throws up. We called Dr Kosnik and he said if anna woke on thursday with a h/a we would order an LP. Well I woke up and rolled over and felt anna's head and it was hard as a rock so off to the er we went. Today Anna's back's hurts and is lying flat. I will update over the weekend to let you know what going on.. Thanks again for all your prayers and support.
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2 comments:
Sending love to your little girl. I also have PTC so I know how hard even getting out of bed can be. I will be praying for her and your family
Thank you.. Praying for you also.
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