Update:

Sorry its taking so long. The blog logging me out and I finally was able to get it. In January we had to have Anna Marie's shunt externalized for a 8 days to see if we could get an infection to go away. WE put it back in and came home she was home for several weeks then started back to school on Feb 7th. Then I recieved a phone call on Feb 22nd from the school that Anna's back was leaking fluid. Once we arrived she had gone thru a couple of 4x4's. WE took her straight to the ER and waited for 1:45min then was taking to a room once we were in a room they took her straight to the OR for emergency surgery. The found her elbow connector in her back eroded took it out replaced it fixed a spot on her belly then stapled her back up. Then we had another spot show up on her belly we decided on thursday we would probably have to go back in on Friday. So on friday we decide to take everything out and let her body rest.