Yesterday's Dr visit and Surgery Change

Good morning sorry I didn't get a chance to write this last night. Well our first Dr's appt was with the Encrin. As most of you know Anna doesn't have any human growth hormone b/c the fluid flatten her putarity 2 yrs ago and it caused it to quit producing HGH so we did a ton of blood work to see what other hormones are not working and to find out what step we should next. However post surgery once we figure out how she is doing we will start growth hormes (HGH) on a very small dose. So it looks like we will be coming to Ohio allot. Also as most of you know Emory wont touch Anna that's why we are up here. So we can get her the treatment she deserves and needs. Okay so that was the first Dr. Then 2nd was the Nuero and they are now saying she could have secondary migraines b/c of the psuedotumor. So after 1month after surgery we will wean her off of the Topomax (Praise the Lord)! And see if she does have headaches or if it was just the pressure. Then we headed back to our "quarterback" Dr Katz. Wow is he the man, he has contacted every Dr we have been to and discussed our plan to make sure it the plan he wants for Anna Marie. So he is on board and will keep going. Well to call our night we went to Dave and Busters for my birthday and one of the lady's from the office made me a chocolate cake (wow) and then she came and celebrated with us. Well that was our day in a nut shell. O yes the moved the surgery tomorrow b/c of an emergency that came in. So surgery will be at 1200 tomorrow.