So, here is the new's we are going home tomorrow on alot of Topomax and we will return Nov 17. To see what the next step will be. Please continue to keep Praying for Anna Marie as her pain is still high. We will see you soon.
Dingess Crew
This is Anna Marie Dingess's blog about her fight with Pseudotumor Cerebri. Pseudotumor is so rare in children that she is the 42nd child in the United States diagnosed with this disease.
Friday, October 31, 2008
Thursday, October 30, 2008
Wednesday, October 29, 2008
So last week was a hard week on Anna Marie. Then on friday they tried her on Lasik (waterpill) and she had a allergic reaction to that. On Monday we went to the ped. and she felt her decompression sites and talked with Dr. Kosnik who then intern said we needed to be up there on tuesday to see him. We arrived at 2:15pm on tuesday and saw him at 4:00 when he saw Anna he sent us straight to the hospital to be admitted. At around 8 the started her on some really strong steriods, zantac and back on topomax. We are seeing if that will let Anna get some relief, and then we will do surgery on friday. He moved surgery from today to friday so we will see how Anna is progressing. Thank you for your continued prayers if I don't answer right away I didn't bring the laptop with me so I have to go downstairs and get on the computer.
Anna's room # 3019 and my cell 404-569-4742
Thanks again
Joy and Dingess crew
Anna's room # 3019 and my cell 404-569-4742
Thanks again
Joy and Dingess crew
Wednesday, October 22, 2008
Good Morning, I wanted to give everyone an update so you can Pray. Since Friday Anna has been having some really bad migraine's. To the point where yesterday she wanted to put her head thru a wall. Lisa is now on the way to school to get her now b/c she is hurting so bad. Also Please Pray for me as its getting harder to watch her be in pain and not being able to take it from her. Thank you for continued Prayers and friendship.
Wednesday, October 15, 2008
Update
Anna's prognosis is great. There seems to be more good days than bad. She is still suffering from migraine headaches though. She has completely come off of Topomax. A little history behing the Topomax, she has been on it for about 2 years. So we are excited about that being done. It will be another month or two before we know if her surgery worked, but, we are going on on Nov 17th to see the doctors at Ohio State Medical Center in Columbus, OH. They will make the determination on whether another brain surgery is needed or not. Please be in prayer for us as we make that trip.
Monday, October 6, 2008
A big THANK YOU!!
Anna's Car Show was a smashing success. There were a few minor glitches here and there. Primarily with us getting the judges all there to start the judging, but I take responsibility for that. I apologize to the car show participants. I was getting pulled 30 different directions all day. I didn't even eat until about 9 that night. A big thank you to everyone that came out and helped to support Anna Marie. A big thank you to Vendetta Pizza Cafe for hosting the show. A big thank you to all the volunteers, from parking, manning the booths, musicians, judges and anyone else who was involved THANK YOU, we couldn't have done it without you. William and Mae (Spelling?) Thank you so much. JT, Thank you so much. All the sponsors, Thank you so much. All the people that showed up, Thank you so much and finally to Anna Marie, you are the greatest daughter in the world and I am so proud of you.
Sunday, October 5, 2008
The Car Show is upon us
Remember, Anna Marie's Car Show is today at Vendetta Pizza Cafe at 1170 HWY 155 South McDonough. Directions are real simple, It is on the Griffin side of the interstate, past the Krystal and Bellamy Strickland Collission Center on the right. Please come out and show your support for Anna Marie. Even if you can't attend the car show, please consider eating there because we get a portion of the proceeds.
It will be a lot of fun with inflatable jumpers, silents auctions, raffles, food, live entertainment, cars (one is worth $750,000) and of course fun. You can pick up a shirt, while your there for only $15. We hope to see you there
It will be a lot of fun with inflatable jumpers, silents auctions, raffles, food, live entertainment, cars (one is worth $750,000) and of course fun. You can pick up a shirt, while your there for only $15. We hope to see you there
Friday, October 3, 2008
Here is a picture of one of the shirts
Here is one of the shirts that we have for sale. These are the same design as our athletic shirts that will be on our athletes competing in various marathons and triathalons. You can buy one of these shurts for just $15 and become part of the team. All the proceeds will be used for Anna Marie. Just email me at markdingess@gmail.com or call me 404-348-7681 to become a team member today.
Team Shirts are in!!
Team Anna Marie shirts are done. They are looking really good and I will post pictures on the site later for you to see. If you want to wear the same design shirt that the team itself will be wearing for sporting events, then contact me today. They are available for $15 a shirt and all proceeds go to helping find Anna Marie a cure!! You can contact me at markdingess@gmail.com or call 404-348-7681.
Wednesday, October 1, 2008
Anna Marie's Car Show needs Volunteers this Sunday!!
This Sunday, at Vendetta's Pizza 1170 Hwy 155 South McDonough, GA 30253, is Vendetta's Fundraising Car Show for Anna Marie!! They have been planning it for a long time and we hope it will be a success. We aplogize it is on a Sunday, as many of you know, if the church doors are open then we are there, but this is the only day they could use the entire parking lot. The other stores in the strip mall are open Monday through Saturday and so the only day they can do it is Sunday. We need a minimum staff of about 24 volunteers. We need 4 for registration, 4 more traffic, 2 for inflatable toys watching, 6 judges for the cars (you must be at least semi experienced with cars), 3 for security, and 4 to sell raffle tickets. Now this is the bare minimum, so the more, the merrier. The car show is open to the public from 12pm-6pm. We need all volunteers there by 10:30 am, due to the fact that cars will start coming in and registering starting at 11 am and we need to have a group meeting at about 10:35 am to get people on the same sheet of paper. Please email me back or call me at 404-348-7681 if you can help.
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